By: Rachel Kassulke
Chronic fatigue is one of the hardest things for a healthy, energetic and normal person to understand, so how best to describe how it actually feels? Perhaps the most effective way would be to compare it to some more relatable everyday scenarios. So here it goes:
Imagine you’re midway through an atrocious bout of the flu. No, not the sneeze and sniffle sort of flu. I’m talking the full works: body aches, pounding head, cold sweats, chills and the raging fever sort.
Now with your energy levels already running on 50 percent, you head to the airport and embark upon an epic 24-hour flight. The seat isn’t big enough to swing a hamster in, and the food is inedible at best. An irritating child kicks you in the small of your back for hours on end, and your body now feels even more bruised, battered and achy than before.
Sitting in the dark and surrounded by hundreds of snoring strangers, you feel isolated and totally alone. You give up trying to sleep and watch film after film to pass the time, but this makes your eyeballs sore and sandpaper dry. You’re desperately thirsty, but as you’re pinned in by the window, you can’t risk a full bladder. Five films and two rock-hard bread rolls in, you realize just how far you still have to travel and you begin to feel a bit beside yourself.
By the time you arrive at your destination you look, feel and smell like death. As you exit the plane, you’re hit in the face by heat and humidity. You’re feeling weak, disoriented and so dizzy from exhaustion you can hardly stand. Your brain is completely shrouded in fog, and you can barely remember your own name.
By now you’re running on 30 percent, tops.
Fast forward to that night and your body is moving in slow motion. Your use of speech is limited to grunts, and your concentration levels are shot. You’re convinced you’re battling the worst diagnosed case of jet lag ever. But still, it’s holiday time, so you decide to hit the town. Copious amounts of alcohol and some rather suspect street food later, you collapse into bed.
RESOURCES FROM AMERICAN SLEEP ASSOCIATION
How to fall asleep
Find a support group
Ask the sleep doctor
The next morning, before you even struggle to open your eyelids, you realize something has gone terribly wrong with your body. Panic starts to set in and you feel scared and vulnerable.
Your battered limbs feel as if they’ve been encased in cement and bolted to the bed. Raising your head from the pillow is a step too far. It’s as much as you can do to twitch one finger. You soon come to the conclusion you’re experiencing the worst diagnosed hangover ever.
Despite having slept all night, you’re now running on 20 percent.
Eventually, your body starts responding to basic requests, and you heave yourself into a sitting position. It takes another good few minutes of concentration before you can stand. You decide it’s probably safer to sit down on the floor while taking a shower. Hot water helps with the aching bones, but washing your hair is out of the question, as your arms aren’t strong enough to lift above waist height. Ditto for teeth, so you resort to resting your elbows on the sink while you brush.
By the time you’re clean, you’re running on 10 percent, max.
Heading out for a day of sightseeing, you attempt to climb (what appears to be) the steepest hill you’ve ever seen. Everyone else seems to be overtaking you at speed, but putting one foot in front of the other is proving something of a challenge. It feels as if you’re wading through treacle; every step takes concentration and requires way more energy than you have. You hit the wall.
By the time you go to bed that night, every limb is on fire, and you’re so knackered you can neither think nor speak. Another shower is certainly out of the question. Nausea is coming in waves, and you think you might be sick. You pray it’s not that dodgy street food from the night before.
Climbing into bed you expect to fall into a deep and wonderful sleep — but you don’t. Despite being delirious with exhaustion, you lie awake for hours on end. You need the to go to the bathroom at least six times, and each time it’s a mission to get out of bed. It’s now “stupid o’clock” in the morning, and you’re wondering how it’s even possible to experience extreme fatigue and insomnia at exactly the same time.
At most, you’re now scrapping the barrel on five percent.
The next morning you wake up, peel open your eyelids and realize you still feel exactly the same as you did the night before. The thought of facing another day like yesterday is just too much. You could cry.
A full night’s sleep and you’re only back up to a measly 10 percent.
That day, you lie on the bed and do absolutely nothing. You can’t bring yourself to read, watch TV or even talk. By nighttime, you’re back down to 5 percent. You don’t sleep well, and the next day you wake up feeling exactly the same sodding way. And so it goes on.
Occasionally, after prolonged periods of rest, your body charges back up to 50 percent – you feel pretty fantastic. But then you go and ruin it all by trying to do too much. A slap on the hand for being overly ambitious and back down to 5 percent you go.
Weeks pass. Months pass. Years pass. You’re forced to accept this is now the new “normal.”
You hate your illness. You hate your body. You hate what you can no longer do. Your doctors tell you there is no cure for chronic fatigue, just “rest.”
You could cry. You often do.